Here I am again. Friday night after midnight and cant' sleep. What's new? I have a g=big weekend ahead of me. Packing for our trip to palo alto ca and stanford university school of medicine. Testing me for CCSVI ( Chonic Cerebrial Venous Insuffieciency ) on Wednesday and procedure on Thursday. I will post more later,.

UTI

I have had a Urinary Tract Infection this week. It can be a side effect of the Tysabri infusions. I went to my PCP and he started me on Cipro for 10 days. Evidently we MS'rs don't always know when we have a UTI because we can't feel it happening like a healthy person does. Kind of like my Mom and her diabetes. This happened to here so many times she now takes a prophylactic antibitotc twice a day for the rest of her life. I don't want to have to do this, I mean more pills.... but you do what you gotta do. All for now.

Hi everyone. I am taking a proactive approach to my MS treatment. I have sent my history and MRI's to Dr Michael Dake at Stanford University Hospital. He is currently testing and treating CCSVI (chronic cerebrospinal venous insufficiency). He called me Monday night and we went over everything about the testing and procedure. I am now awaiting a call from Alexandra his scheduler for my testing date and to see what or if insurance will pay. I know it's not a cure, but it is a step in the right direction. More to come later.

Never done this before

Well this is a first for me because I have never blogged.

I have MS - Multiple Sclerosis. I wish I did not but I do and I am doing the best I can to live a full life and keep working. My life has change dramatically since I had my first symptom almost 10 years ago. Was that really when I had my first symptom?? Who know?? I think this has been a long time coming - maybe my whole lifetime. That is all for now and I will pick it up later.